Pulmones - Suomen Keuhkosyöpäyhdistys ry
Pulmones - Finlands Lungcancerförening rf
Support and Help
Receiving a lung cancer diagnosis can feel overwhelming and life-altering. Gradually, and often with the support of other patients and trained peers, the illness settles into a kind of framework and slowly becomes a part of one's life.
There are others like us—you are not alone. There may be more treatment options than what you initially thought. Connecting with others who share similar experiences can provide strength, information, and hope. Pulmones plans to establish a guided online peer support group and already connects patients through it Finnish-language Facebook group.
https://www.facebook.com/groups/suomenkeuhkosyopapotilaat
You are not alone.
🌍 Links to International patient groups (mutations, drugs, information)
- KRAS mutation KRAS kickers https://www.kraskickers.org/ https://www.facebook.com/groups/kraskickers
- Small cell lung cancer https://www.nothingsmallaboutit.com/
- NTRK mutation NTRKers https://ntrkers.org/
- BRAF mutation BRAF bombers https://www.facebook.com/groups/brafbombers
- Tagrisso (osimertinib) Patients & Caregivers Group https://www.facebook.com/groups/2098822473719352
- RYBREVANT (Amivantamab) Patient & Caregiver Group https://www.facebook.com/groups/1157468908786733
- EGFR Resisters Lung Cancer Patient Group https://egfrcancer.org/ https://www.facebook.com/groups/1992981107603006
- EGFR L858R Lung Cancer Mutation Support Group https://www.facebook.com/groups/858166318311553
- EGFR Exon 20 Group (FB-groups for Exon 20 and HER 2 Exon 20 patients, also for Nordic patients and for the users of all Exon 20 drugs) https://exon20group.org/
- Exon 20 Group Nordic https://www.facebook.com/groups/1482395965826810
- ALK Positive https://www.alkpositive.org/ https://www.facebook.com/ALKpositiveEurope https://www.facebook.com/groups/ALKPositive/
- ROS-1-ders https://www.facebook.com/TheROS1ders
- MET Overexpression
https://metcrusaders.org
Finnish-speaking patient groups for different gene mutations
- Pulmones - EGFR-potilaat Suomessa
https://www.facebook.com/groups/egfrpotilaatsuomessa - ALK-positiiviset Suomessa
https://www.facebook.com/share/g/18GRVLZq1u/?mibextid=wwXIfr
